Legends of Windemere

Many times, I’ve seen my son or an autistic student have trouble with something that we take for granted.  Understanding social cues, basic math, idioms, and the list can keep going because it differs from person to person.  When I see it happening with someone who doesn’t know much about autism, I see that person struggling to figure out why the problem is happening.  Not how to help, but the why.  So, I’ve ended up explaining the following to adults and students:

Autistics, and neurodivergent people in general, live in a society that was not designed with them in mind.  Everything around us was made with a neurotypical mindset and expectations.  So, those with autism need to learn ways to navigate this world using their own abilities.  Accommodations can be made as long as the people around them are understanding and willing to be flexible.  Sadly, this isn’t always the case because those that don’t have autism don’t always understand what is going on.  Even parents of autistic children can be lost on how to help or grow frustrated at a situation.

Now, the previous paragraph were my own thoughts from observing my son and some of my students.  It also came about when arguing with a person who swore that those with autism were simply lazy and shouldn’t have any problem in society.  I still don’t know if I convinced this person otherwise.  Anyway, the encounter and other experiences really got me thinking about how someone with autism views the world.  It isn’t something I can fully understand though, so this is all guesswork.

One thing that many people with autism have to deal with is overstimulation, especially children and nonverbal.  This is when their senses and/or emotions become overloaded and they start losing control.  Stimming, leaving for a safer area, and other tactics can help to avoid a meltdown, but this is a big challenge.  From talking to my son about how he senses and feels things, it’s almost like he doesn’t have a natural blocker to subconsciously filter out various stimuli.  As they get older, they learn how to recognize when they are reaching this point, but that times time.  Big crowds, loud music, new situations, angry yelling, and other highly stimulating situations can still come with a risk.  This is when earplugs, headphones, and stimming tools can be useful if the person has them.  For example, my son wears earplugs to the movies because they can be really loud at some points.

Some people with autism might depend on other senses too.  If the world is too bright or loud then they might take action to limit those senses.  Sensitive hearing seems to be fairly common with autistic people, which I don’t understand the reason for.  Maybe they grow up having to listen harder since they have trouble with instructions.  Still, I’ve met autistic people, and other neurodivergent types, who have incredible senses of smell.  Some hate being touched, so they avoid that sense, but others depend on it a lot.  The point is that an autistic person may develop a way to view and navigate the world depending on a sense hierarchy that differs from our own.

There is also the usage of what one may call a sixth sense, which I’ve heard has caused a stir in a few circles.  There is a current theory that nonverbal autistics have telepathy and try to communicate in such a way.  It was explained to me that this is more them reading our thoughts, which has some anecdotal evidence.  Don’t think I’m going to get into this because I’m still reading up on the theory.  It’s a little hinky to me, but I don’t know if that’s because me being a fantasy author thinks of telepathy as a two-way communication instead of simply reading thoughts.  I also know that parents of nonverbal children can get desperate for a sense of connection and will jump at any theory to lock in that their child is somewhere in there.  I’ve been there myself when my son was much younger and had a major speech delay.

My own thoughts on this is that people with autism grew up being taught how to control their emotions.  At least to be aware of the stronger ones because these could trigger meltdowns.  Nonverbal children would have a harder time and probably have a higher chance of seeing frustration-based outbursts.  Keep in mind that not being able to speak doesn’t mean they are unaware or stupid.  In fact, I kind of think that they develop what one would call empathy.  They can sense when a person around them is about to get angry or sad through nonverbal communication.  For example, a nonverbal autistic person might notice someone’s voice rise in a way that they recognize as an angry outburst is about to happen.  So, they might try to leave the area or, if unable to, become agitated long before anyone else notices what is about to happening.  This is just a theory of my own, which I’m still building in my own mind.

In the end, it’s difficult for any neurodivergent person to navigate our society.  Patience, understanding, and helping when asked is needed from neurotypicals.  Imagine if you lived in a world where it was geared towards a group you weren’t apart of.  Maybe there’s a dimension out there where society was built around people being blind, so the minority with eyesight have challenges to face every day.  That’s extreme, but I think that would get the point across easier than a more subtle example.